KDIGO Session at 2024 EDTNA-ERCA

 

Are you attending the 52nd EDTNA/ERCA International Conference in Athens, Greece? Don’t miss the KDIGO session “Easing the Symptom Burden of People with Kidney Failure: The Vital Role of Nurses in Dialysis” on Monday, September 23, at 11:00.

The session will feature a diverse panel of experts, including nurses and patients, who will present the latest research findings on dialysis-related symptoms, share firsthand experiences from both patients and caregivers, and offer valuable insights into how nurses can enhance symptom management and empower self-care. It will also feature a Greek perspective on dialysis care.

Details include:

• Paul Bennett – Nurses are Pivotal in Dialysis Symptom Management The Latest from KDIGO:
  Paul will provide an overview of the history of nurses’ involvement with KDIGO, including key discussions from the Symptoms meeting in Berlin and recent updates from Rome.  
• Madeleine Warren – Symptoms: The Patient Experience:
  Madeleine will discuss how dialysis is experienced as a series of symptoms from a patient’s perspective, highlighting the daily challenges faced by patients and the need for greater prioritization of symptom control in care.
• Malene Deele – Symptoms: The Informal Caregiver’s Experience:
  Malene will examine the impact of dialysis symptoms on informal caregivers, emphasizing person-centered care and the interconnected burdens faced by patients and caregivers, as well as the resources and barriers encountered in managing these symptoms.  
• Anastasia Liossatou – Dialysis Symptoms Burden: An Interim Report of Responses from Greek People on Haemodialysis:
  Anastasia will provide insights on the management of dialysis symptoms within the Greek healthcare system, sharing her clinical experiences and conversations with patients.
• Jeanette Finderup – Nurses Leading Symptom Management:
  Jeanette will bring in her research to discuss innovative approaches to integrating symptom management into nursing practice across Europe, supporting patient self-management, and identifying key areas where crucial conversations need to take place.  

Speaker bios:

Professor Paul Bennett

Paul Bennett has worked in the US and Australia, focusing on pragmatic clinical research strategies to improve the quality of life of people with kidney disease. Most recently, Paul co-chaired the 2023 KDIGO Nursing Management of Dialysis Symptoms meeting and was lead author of the 2023 International Society of Peritoneal Dialysis Exercise Practice Recommendations.

Madeleine Warren

Madeleine (Maddy) Warren (@queenofdialysis) is a Consultancy Director and Advocate. Maddy was a Vice President in Global Talent Development at Goldman Sachs, with a focus on diversity, inclusion and inclusive leadership, before setting up her consultancy in 2016. She consults internationally for Medical Technology, pharmaceutical, and healthcare organisations on patient engagement, advocacy, market access, and policy. She is a vocal campaigner and advocate in the kidney community, combining public speaking, education, lobbying, and peer support, with a particular interest in home dialysis, culture of care, and the experiences of young adults. She is a Trustee of Kidney Care UK, a member of the NHSE Renal CRG, and a two-time TEDx speaker.

Maddy has thrived on nocturnal home haemodialysis for 20 years, with 5 years on PD before that. In 2018 she was the first woman on dialysis to run the London Marathon. She is passionate about exercise and fitness on dialysis, is a fully licensed skydiver, and a keen participant in amateur musical theatre.

Malene Deele

Malene Deele, a law graduate from Copenhagen University, leads the Danish Kidney Association as its Chairman. She also serves as Vice Chairman of the Danish Patients organization. With her legal background, Malene focuses on health law and policy in Denmark. Her personal experience as a chronic kidney disease (CKD) patient, coupled with her role as an informal caregiver for her husband who also has CKD, brings a unique perspective to her advocacy work.

Anastasia Liossatou

Anastasia Liossatou is the Head Nurse at the Haemodialysis Unit of the General Hospital of Kefalonia, Greece. With 27 years of experience in nursing, she has dedicated 24 years to the field of nephrology. Anastasia received specialized training as a nephrology nurse at the General Hospital of Papageorgiou in Thessaloniki, Greece. Her professional background includes experience in haematology and hypertension, gained while working at The Royal Liverpool University Hospital and St George’s Hospital in the UK. Anastasia holds a master’s degree in nursing from the University of Liverpool and a Diploma in Education.

Since 2003, Anastasia has been an active volunteer with EDTNA/ERCA (European Dialysis and Transplant Nurses Association/European Renal Care Association). In 2018, she joined the EDTNA/ERCA Executive Committee as the Publications Coordinator. Her contributions to the organization include editing and authoring several guidebooks and presenting at numerous EDTNA/ERCA conferences. Currently, Anastasia is pursuing her PhD at the Department of Nursing, University of Peloponnese, in Tripoli, Greece.

Jeanette Finderup

Jeanette Finderup works as a clinical nurse specialist in the Department of Renal Medicine at Aarhus University Hospital, Aarhus, Denmark, and as an associate professor at the Department of Clinical Medicine at Aarhus University, Aarhus, Denmark. Both clinically and academically, Jeanette focuses on patient involvement, including shared decision-making and self-management support. Jeanette is leading a nursing research programme in symptom management for people with advanced kidney disease and their informal caregivers.

Learn more.