The KDIGO Genetics in Kidney Health Summit took place in Chicago, Illinois from September 25-26, 2025. This summit built upon the findings of the KDIGO Controversies Conference Genetics in CKD held in March 2021. That conference report is available here.

To further develop these principles into practical strategies, KDIGO held an educational summit to discuss the growing role of genetics in nephrology and the need for wider genetic testing adoption in the United States. This invitation-only summit was chaired by Dr. Ali Gharavi (Columbia University Medical Center), Dr. Anjay Rastogi (University of California, Los Angeles), and Dr. Xiangling Wang (Cleveland Clinic).

 

SESSION RECORDINGS

Session 1A: Summit Overview & Objectives

Session 1B – Exemplar Conditions

Session 1C – Renal Genetics

Session 1D: Understanding the Current Genetic Testing Recommendations

Session 2 – Q&A

Session 3 – Patient Stories

Session 4a: Foundational Genetics Primer

Session 4b: Center of Excellence in Renal Genetics with Q&A

Session 4b-2 From Early Adopter to Team Leader with Q&A

Session 4c: Resolving Ambiguous Genetic Testing Results

Session 4c-2: Art of Genetic Counselling in Nephrology with Q&A

Session 4d: Investigate the Rare, Decode the Mystery w Q&A

Session 4d-2: Case-Based Review of Genetic Testing Interpretation

Session 5a: Genetic Evaluation in Kidney Transplant Recipients and Donors (with Q&A)

Session 5b: Polygenic Risk Scores (with Q&A)

Session 5c: Reproductive Nephrology and Family Planning (with Q&A)

Session 5d: Patient Empowerment- Genetic Kidney Disease is a Family Matter (with Q&A)

Session 5e: Closing Remarks & Adjourn